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KMID : 0894920220220020001
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Journal of the Korean Association for Persons with Autism
2022 Volume.22 No. 2 p.1 ~ p.36
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Exploring the Experiences and Support Needs of Parents of Children with Developmental Disabilities in Special Schools: Focusing on the Daily Living Skills
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Kang Young-Mo
Pang Dongshan
Son Seung-Hyun
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Abstract
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This study involves a focus group interview(FGI) conducted to explore the experiences and support needs of parents of children with developmental disabilities(DD) in a special school, with particular emphasis on daily living skills(DLS). Eight parents participated in the interviews using Zoom, a live online video conferencing program. We transcribed the content from the two interviews into a 36-page Hancom Hanword(hwp) document and analyzed them using thematic analysis. The analysis results derived 3 domains, 11 subordinate domains, and 34 meaning units. First, the difficulties of raising a child with developmental disabilities were mainly related to growth, developmental problems, unacceptable behavioral characteristics, and non-consistent surroundings. Second, in terms of family’s ability to access education, the main focus was on mental health clinic medications, special education related services, and practical experience and feedback on the implementation of ABA in families. Third, as suggested by parenting experiences, the support needs included consistent teaching of DLS from an early age and strengthening ‘special education’ such as support for severe developmental disabilities, as well as specifying parental education, improving teacher professionalism, and developing a system of cooperation and support. Based on the results of the study, a discussion and suggestions for the practical improvement of DLS for children with DD are discussed.
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KEYWORD
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Special School, Parents, Developmental Disabilities(DD), Parenting Experiences, Supports Needs, Daily Living Skills(DLS), Focus Group Interview(FGI)
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